Rare Voices Podcast in partnership with super-rare.org and funded by The National Lottery Community Fund.
What’s it like living with a rare blood or bone marrow disorder? Or parenting a child who is? Series one of the Rare Voices podcast invites people living with these conditions to share their perspectives and advice for those facing similar challenges.
Hosted by Mark Rowland, this was a joint partnership between The Aplastic Anaemia Trust, PNH Support, DC Action (supporting people with Dyskeratosis Congenita and Telomere Biology Disorders), Fanconi Hope, SDS UK (supporting people with Shwachman Diamond Syndrome) and Congenital Anaemia Network (CAN). It is funded by The National Lottery Community Fund
Listen to series one: